Dwarfism Awareness Month

Etta will be 6 years old next month. Before she was born we were told several things about her including that she may not survive birth or long afterwards. We were prepared for her to be extra unique. She definitely is. She was called tiny baby from the beginning. She was diagnosed with failure to thrive, microcephaly,  low muscle tone, and developmental delay. It took her a long time to reach physical and adaptive milestones. She was close to 2 years old when she walked. Feeding was a challenge. She was then diagnosed with a nonspecific/ nongenetic form of dwarfism. Most people are familiar with achondroplasia, primordial dwarfism, and other forms. Etta's form is her own. She may grow slowly or she may stop tomorrow. We don't know. No matter what she will be all that God has meant for her to be. Anyone who meets her knows she can be a force to be reckoned with...